World map of Paramyotonia congenita View more
  2. Paramyotonia congenita
  3. Forum
  4. Top questions
  5. Question 18
18

What is the prevalence of Paramyotonia congenita?

How many people does Paramyotonia congenita affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Paramyotonia congenita
1 answer
There, it was estimated that the prevalence of PC is between 1:350,000 (0.00028%) and 1:180,000 (0.00056%).[20] However, the German population of patients with PC is not uniformly distributed across the country. Many individuals with PC herald from the Ravensberg area in North-West Germany, where a founder effect seems to be responsible for most cases.[20][34] The prevalence here is estimated at 1:6000 or 0.017%.
(Wikipedia)
I have also read that it is more prevalent in Scandinavian countries.
Posted Apr 27, 2019 by seasonss 150

Prevalence of Paramyotonia congenita

Paramyotonia congenita life expectancy

What is the life expectancy of someone with Paramyotonia congenita?

2 answers
Celebrities with Paramyotonia congenita

Celebrities with Paramyotonia congenita

1 answer
Is Paramyotonia congenita hereditary?

Is Paramyotonia congenita hereditary?

2 answers
Is Paramyotonia congenita contagious?

Is Paramyotonia congenita contagious?

2 answers
ICD9 and ICD10 codes of Paramyotonia congenita

ICD10 code of Paramyotonia congenita and ICD9 code

2 answers
Natural treatment of Paramyotonia congenita

Is there any natural treatment for Paramyotonia congenita?

1 answer
Living with Paramyotonia congenita

Living with Paramyotonia congenita. How to live with Paramyotonia congenita...

1 answer
Paramyotonia congenita diet

Paramyotonia congenita diet. Is there a diet which improves the quality of ...

1 answer

World map of Paramyotonia congenita

Find people with Paramyotonia congenita through the map. Connect with them and share experiences. Join the Paramyotonia congenita community.
View map

Stories of Paramyotonia congenita

PARAMYOTONIA CONGENITA STORIES
Paramyotonia congenita stories
MY MOTHER, HER AUNTS AND OTHERS IN HER FAMILY HAD A STRANGE CONDITION THAT CAUSED THEIR LIPS TO PURSE, EYES TO SQUINT SHUT AND HANDS TO GO INTO FISTS WHEN THEY GOT COLD. THIS DATED BACK TO AN ANCESTOR LAURA PHELPS CLARK IN THE MIDDLE 1800S. THIS WAS THE F
Paramyotonia congenita stories
PARAMYOTONIA CONGENITA
This condition has been passed from my grandad, his 3 children, my brother, his 2 children and my 2 children and me. We have been to doctors, but none of them helped. We all cannot be too long in cold water, cold weather conditions and g...
Paramyotonia congenita stories
MY PMC
I don't really know when my condition began. I only know that I've "always" had it (as does my mother and my sister). As a youngster in the 60s & 70s, I'd run and play on the playground (I grew up in NYC) until I simply couldn't walk and my best frie...

Tell your story and help others

Tell my story

Paramyotonia congenita forum

PARAMYOTONIA CONGENITA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map