Zespół Ehlersa-Danlosa - Jak z nim życ? Czy możesz być szczęśliwy/a żyjąc z nim? Co musisz zrobić żeby szczęsliwy/a?

Zespół Ehlersa-Danlosa - Życie z nim może być trudne, ale musisz walczyć i próbować być szczęśliwy/a!

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Oh man, this is hard. I am in constant pain since I was 15 years old. That's almost 7 years with pain. But am I happy? I think so. But that has nothing to do with EDS. I am happy despite EDS. Although I must say, there are days when I am in so much pain and despair that in those days I don't consider myself that happy. Pain is here with me everyday. Constant pain. Not easy, man.

I don't have any advice. The worst thing someone can tell me is "at least is not cancer". I'm not saying that I have cancer, or that EDS is worst than cancer but how can they even compare?

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