Orginalny
Educate yourself. There are still many doctors that don't know a lot about it. Find yourself a good hematologist and read what you can about the mutation. Knowing what medications you can take, what signs to look out for and knowing how to help your doctor help you manage your mutation will make all the difference.
If I had known more about my diagnosis in the beginning I could have been more aware of my diet and not spent so much time trying to figure out why my inr kept changing so drastically.