Orginalny
Mastocytosis is tricky because symptoms are different for everyone. The worst is anaphylaxis. You must remember, anaphylaxis looks different on everyone, so talk to your doctors as to when to use an EPI Pen. Here are a few others have experienced: fatigue, GI issues, urticaria (hives), asthmatic responses, brain fog, periods of high heart rate, dizziness, low blood pressure, headaches, weight fluctuations.
As for most limiting, for me, the cardiac symptoms are the most limiting. This disease can make you allergic to anything at anytime. Exercise, foods (even if you have no known food allergies), alcohol, environmental elements, stress, weather changes; the list goes on.
Journal your days and you will soon pinpoint your triggers.