Zespół POEMS - Jaką radę dałbyś komuś kto właśnie został z nim zdiagnozowany?

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I would connect with the few folks who have been diagnosed but i would caution! That poems makes snowflakes.of everyone. We're all snowflakes but each have unique variables and sometimes we are very unalike. There is a comfort in learning others have poems however it is dangerous to believe that we are not receiving proper care simply becauae we have learned of treatments others are receiving that we are not. We are as unique as snowflakes.

It is great tho to go to your doctor ready to ask about treatments you learn others have.

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