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Is there any natural treatment for Pontocerebellar Hypoplasia?

Are there natural treatment(s) that may improve the quality of life of people with Pontocerebellar Hypoplasia? Here you can see if there is any natural remedy and/or treatment that can help people with Pontocerebellar Hypoplasia

Natural treatment of Pontocerebellar Hypoplasia
2 answers
No, thought some therapies will help improve the conditions.
Posted Aug 10, 2017 by Benjamin Busque 2620
No. There's no cure, natural or otherwise, for PCH. However, natural remedies exist that may help relieve some symptoms that generally accompany the disorder. A good example is the use of CBD oil for seizure management.
Posted Sep 12, 2018 by Christina 1900

Natural treatment of Pontocerebellar Hypoplasia

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World map of Pontocerebellar Hypoplasia

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Stories of Pontocerebellar Hypoplasia

PONTOCEREBELLAR HYPOPLASIA STORIES
Pontocerebellar Hypoplasia stories
MLSBKS0422'S STORY
My son had PCH1A, a mutation of the VRK1 gene.
Pontocerebellar Hypoplasia stories
BENJAMIN, PCH3
Ben was diagnosed at the age of one and a half with PCH3 through MRI.   Ben's condition includes Optic Nerve Atrophy, Cortical Visual Impairment, Epilepsy, Microcephaly, Club Foot, etc.  He was born in 2008 and is maintains a small stature (approx...
Pontocerebellar Hypoplasia stories
BABY PAYTON
Our beautiful little girl was diagnosed when she was 4 months old when she became very sick and ended up in the hospital for a 2 week stay. She was diagnosed by MRI. We have yet to receive a genetic diagnosis. She is now almost a year old and she has...
Pontocerebellar Hypoplasia stories
LITTLE LUKE
It didn't take long after the wedding to find out we were pregnant 🤰🏼And expecting a little boy 👶🏼We couldn't be any more excited! The day finally arrived and labor and delivery was a breeze Luke came into this world on 7-...
Pontocerebellar Hypoplasia stories
GENETIC DIAGNOSIS
We received Colton's genetic diagnosis via whole exome sequencing in September of 2015. He has PCH2 due to the TSEN54 mutation.  

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