What famous people have Porphyria? Find out which celebrities, athletes or public figures have Porphyria.

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Stories of Porphyria

PORPHYRIA STORIES

VIEWS

BY

PORFYRI VARIEGATA

739

1/16/16, 10:47 AM by Lisa Lundell

CONGENITAL ERYTHROPOIETIC PORPHYRIA

Hello I am from Pakistan. When I was born, I was completely all right. After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoietic PORP...

683

11/12/15, 10:49 PM by Abdul Waheed Butt

BECAUSE I'M A WOMAN...

I discovered sensitivity to fluoroquinolones after being incorrectly prescribed Cirpro for a basic UTI in 2014 and felt strange ever since. In 2015, I decided to go on a high protein low carb diet to get healthy. Oct 2016 I was hospitalized for a sei...

425

12/27/17, 10:28 AM by Dayle

DIAGNOSING THE UNDIAGNOSABLE

In 2016, at age 24, I was diagnosed with Acute Intermittent Porphyria (AIP). On November 24th, 2015, I took my initial trip to the Emergency Room. I had severe abdominal pain and nonstop vomiting but was told to just “go home” and essentially ...

414

3/30/19, 12:50 AM by Rebekah G

BORN WITH IT

I was born with it.

272

2/2/18, 8:36 AM by Angelrose

Celebrities with Porphyria