The advances in terms of treatements still seem to be Normasang or heme infusions, in countries such as South Africa where Normasang is hugely expensive and not easily obtainable treatment options still tend to be D10 Infusions. 10D is glucose or dextrose combined with saline and given intravenously at the start of an acute attack.
Hello I am from Pakistan. When I was born, I was completely all right. After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoietic PORP...
I discovered sensitivity to fluoroquinolones after being incorrectly prescribed Cirpro for a basic UTI in 2014 and felt strange ever since. In 2015, I decided to go on a high protein low carb diet to get healthy. Oct 2016 I was hospitalized for a sei...
In 2016, at age 24, I was diagnosed with Acute Intermittent Porphyria (AIP).
On November 24th, 2015, I took my initial trip to the Emergency Room. I had severe abdominal pain and nonstop vomiting but was told to just “go home” and essentially ...