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What are the latest advances in Porphyria?

Here you can see the latest advances and discoveries made regarding Porphyria.

Latest progress of Porphyria
2 answers
gene therapy, in early 2019 the are advances and studies done in mount sinai.

Posted Mar 30, 2019 by Marie 2500
The advances in terms of treatements still seem to be Normasang or heme infusions, in countries such as South Africa where Normasang is hugely expensive and not easily obtainable treatment options still tend to be D10 Infusions. 10D is glucose or dextrose combined with saline and given intravenously at the start of an acute attack.

Posted Oct 5, 2021 by Carollynn 5770

Latest progress of Porphyria

Porphyria life expectancy

What is the life expectancy of someone with Porphyria?

7 answers
Celebrities with Porphyria

Celebrities with Porphyria

4 answers
Is Porphyria hereditary?

Is Porphyria hereditary?

7 answers
Is Porphyria contagious?

Is Porphyria contagious?

7 answers
ICD9 and ICD10 codes of Porphyria

ICD10 code of Porphyria and ICD9 code

4 answers
Natural treatment of Porphyria

Is there any natural treatment for Porphyria?

5 answers
Living with Porphyria

Living with Porphyria. How to live with Porphyria?

6 answers
Porphyria diet

Porphyria diet. Is there a diet which improves the quality of life of peopl...

8 answers

World map of Porphyria

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Stories of Porphyria

PORPHYRIA STORIES
Porphyria stories
Porphyria stories
Hello I am from Pakistan. When I was born, I was completely all right.  After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoietic PORP...
Porphyria stories
I discovered sensitivity to fluoroquinolones after being incorrectly prescribed Cirpro for a basic UTI in 2014 and felt strange ever since. In 2015, I decided to go on a high protein low carb diet to get healthy. Oct 2016 I was hospitalized for a sei...
Porphyria stories
In 2016, at age 24, I was diagnosed with Acute Intermittent Porphyria (AIP). On November 24th, 2015, I took my initial trip to the Emergency Room. I had severe abdominal pain and nonstop vomiting but was told to just “go home” and essentially ...
Porphyria stories
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Porphyria forum

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