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What is the life expectancy of someone with Porphyria?
Life expectancy of people with Porphyria and recent progresses and researches in Porphyria
People with porphyria can lead a long life. The important thing is to avoid porphyria triggers. Alcohol, stress, certain medications and other things can cause the disease to be worse. If you live a healthy, trigger free lifestyle, your life expectancy will be long.
Posted Feb 27, 2017 by Cassandra 1000
As far as I understand, life expectancy is normal so long as the condition is discovered early on and treated appropriately. Years and years of complications of the disease can cause early death, such a causing hepatic carcinoma or kidney failure.
Posted Dec 27, 2017 by Dayle 1450
A long life is possible. My mom is 69 now and is also a porphyria patient.
Posted Jan 12, 2018 by Mari Blignault 1500
AS ANYONE ELSE IN THE REGION.
Posted Mar 30, 2019 by Marie 2500
In terms of the Acute Porphyrias, early diagnosis is important to prevent a severe attack and related complications associated with this.
Those with well managed Porphyria and who have treatment plans in place should be able to live a normal life expectancy. The key is to have regular checkups, avoid known triggers, when an attack comes on get medical assistance promptly to avoid long term damage and complications.
When you are an undiagnosed Porphyriac and are given medication which is unsafe, oftentimes patients can end in in hospital, some may suffer paralysis and require assistance to breath by means of a ventilator.
The sooner the diagnosis the better and the faster recovery. If the patient is not diagnosed and is given unsafe drugs this could result in death.
Those who suffer some form of paralysis can have severe neurological issues, nerve damage, peripheral neuropathy amongst other things.
Early treatment and awareness of this disease is vital in putting measures in place to reduce the risks.
Those with well managed Porphyria and who have treatment plans in place should be able to live a normal life expectancy. The key is to have regular checkups, avoid known triggers, when an attack comes on get medical assistance promptly to avoid long term damage and complications.
When you are an undiagnosed Porphyriac and are given medication which is unsafe, oftentimes patients can end in in hospital, some may suffer paralysis and require assistance to breath by means of a ventilator.
The sooner the diagnosis the better and the faster recovery. If the patient is not diagnosed and is given unsafe drugs this could result in death.
Those who suffer some form of paralysis can have severe neurological issues, nerve damage, peripheral neuropathy amongst other things.
Early treatment and awareness of this disease is vital in putting measures in place to reduce the risks.
Posted May 29, 2021 by Carollynn 5770
