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Is there any natural treatment for Porphyria?

Are there natural treatment(s) that may improve the quality of life of people with Porphyria? Here you can see if there is any natural remedy and/or treatment that can help people with Porphyria

Natural treatment of Porphyria
4 answers
There are no "natural" treatments outside of maintaining a healthy diet that is high in carbs. There is speculation that rich green foods, such as wheat grass and kale, things that are heavy in chlorophyll, are good for those with porphyria as it can act as a heme replacement, but there is no official research on the matter.

Posted Dec 27, 2017 by Dayle 1450
Not as far as I know of. I have even found that eating healthy foods and exercise improves my overall condition

Posted Jan 12, 2018 by Mari Blignault 1500
AVOID TRIGGERS, INCREASE GLUCOSE IN TAKE, REST AND PAIN MANAGEMENT

Posted Mar 30, 2019 by Marie 2500
There are treatments aimed at managing the condition. Many with the Acute Porphyrias will avoid drugs including over the counter treatments for colds or flu because that is often times the trigger, thus looking for alternative or complimentary medicine is sometimes made use of. Again one needs to use caution, just because something is natural or herbal does not mean its safe. Many herbal medicines contain powerful plant ingredients which have chemical compounds similar to those used in drugs.
Aromatherapy can often be used, however one would need to consult with a clinical Aromatherapist who will do an essential oil profiling to find the most suitable essential oil to recommend based on a thorough medical review and approval from your medical team.

Posted May 29, 2021 by Carollynn 5770

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Hello I am from Pakistan. When I was born, I was completely all right.  After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoietic PORP...
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