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Porphyria prognosis
What is the prognosis if you have Porphyria? Quality of life, limitations and expectatios of someone with Porphyria.
Most people with porphyria recover from their symptoms. Because genetic mutations cause this condition, you may experience symptoms throughout your life.
Posted Mar 30, 2019 by Marie 2500
Several people who have inherited Porphyria do not have symptoms and are able to lead relatively normal lives, however having said this there are a good section of the population that suffer from mild to severe symptoms. This is a chronic condition which needs to be managed accordingly, when the disease is managed well it is possible to have periods where there are no symptoms however this is not always the case.
This can certainly progress if there are complications associated with the disease such as kidney failure or liver damage. Often the nerves in the body suffer damage due to attacks which can negatively impact other organs of the body.
This can certainly progress if there are complications associated with the disease such as kidney failure or liver damage. Often the nerves in the body suffer damage due to attacks which can negatively impact other organs of the body.
Posted May 29, 2021 by Carollynn 5770
