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Can people with Porphyria work? What kind of work can they perform?
See how people with experience in Porphyria give their opinion about whether people with Porphyria can work and what kind of jobs are more appropriated for people with Porphyria
I think people with porphyria can work in any job they want depending on the type they have. Some porphyria patients cannot be out in the sun so a job outdoors would not work.
Posted Feb 27, 2017 by Cassandra 1000
I am still searching. Not with my two types AIP and PCT im left in the dark.
Posted Dec 12, 2017 by Verity 500
I think people with porphyria should be careful to avoid stressful situations and working I the sun. I am a teacher and I find it very difficult to open with all the stress and late nights working
Posted Jan 12, 2018 by Mari Blignault 1500
People with this condition can work, in case they don't have acute attacks.
Posted Jul 14, 2018 by Nadezda 750
Any kind of work is fine as long as the patient receives adequate treatment to mitigate episodes.
Posted Mar 30, 2019 by Jocelyn 800
THEY CAN DO WHATEVER THEY WANT, BUT HAVE TO BE CAREFUL WITH STRESSING WORK, OR NIGHT WORK.
Posted Mar 30, 2019 by Marie 2500
Yes one can continue to work with Porphyria, depending on the type you have this will determine the field. If you have a cutaneous porphyria you wouldnt be able to work outside for example as a landscaper or gardener. There are some newer types of clothing which have been developed however these just reduce the risk and dont necessarily eliminate it.
So having said that its possible to work whilst having Porphyria, not every field will be suitable and one would need to take into account the type of work, the environmental conditions and the type of Porphyria to determine that.
A perfect example is I trained as a hairdresser and had to stop because of the reaction to the chemicals, having my hands in water which affected my skin severely.
Many instances the stress of a particular job will be too high and trigger an attack, often times one may have to change careers in order to find more suitable ones.
I would estimate that there are perhaps 25% of people who have Porphyria can work in any type of field, if they have an active porphyria this may affect the percentage, including the fact that there are still many who are undiagnosed with porphyria.
So having said that its possible to work whilst having Porphyria, not every field will be suitable and one would need to take into account the type of work, the environmental conditions and the type of Porphyria to determine that.
A perfect example is I trained as a hairdresser and had to stop because of the reaction to the chemicals, having my hands in water which affected my skin severely.
Many instances the stress of a particular job will be too high and trigger an attack, often times one may have to change careers in order to find more suitable ones.
I would estimate that there are perhaps 25% of people who have Porphyria can work in any type of field, if they have an active porphyria this may affect the percentage, including the fact that there are still many who are undiagnosed with porphyria.
Posted May 29, 2021 by Carollynn 5770
They can do anything as long as the porphyria is under control. During an attack - you cannot do anything but lay in a hospital bed.
Posted Jan 12, 2023 by Tracey 600
