Living with Prader-Willi Syndrome. How to live with Prader-Willi Syndrome?

Can you be happy living with Prader-Willi Syndrome? What do you have to do to be happy with Prader-Willi Syndrome? Living with Prader-Willi Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Prader-Willi Syndrome

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Translated from spanish Improve translation

Are happy people, the only thing we can do for desvalancear your happiness is out of their routine, as they are very structured, therefore any thing out of what makes them have tantrums

Posted Mar 10, 2017 by Johana Pamela 1100

Living with Prader-Willi Syndrome

World map of Prader-Willi Syndrome

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Stories of Prader-Willi Syndrome

PRADER-WILLI SYNDROME STORIES

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SUPPORT FROM PRADER-WILLI SYNDROME ASSOCIATION

I am speaking on behalf of my son Bill. He is delightful and fun, but sufferes from the hunger and anxiety that food and unscheduled events can bring. He has a wonderful sense of humor (about everything except food). He likes to participate in r...

847

12/14/15, 11:46 PM by Bill

RHIANNA, MY GRANDAUGHTER

Rhianna was diagnosed with Prader-Willi at a few weeks old. It would be wonderful to meet another child with the same syndrome who could become a friend to Rhianna and who lives within travelling distance of Guernsey.

836

2/23/16, 3:33 PM by Sue

ARIAH FIRST YEAR

Born Oct 13, 2014. Diagnosed around 3 weeks old through genetic blood tests. Deletion type. NG tube used for feedings, pulse oxygen monitor, and supplemental oxygen at night. Growth hormone. Glasses. Ankle braces/ supports. Now over 1 year old, can ...

783

12/14/15, 1:49 AM by Ariah

ASTON'S STORY

Http://www.facebook.com/astonsstory

752

12/13/15, 7:25 AM by ASTON

BAŞAK MY DAUGHTER...

Başak, was born in Milas on 18.03.2010. Symptoms of PWS from birth. In the same year, diagnosed with PWS. Başak, lived experiences of each child with PWS. Even apart from these, PWS in the literature for non-kidney failure is experiencing. PWS is c...

629

12/13/15, 5:02 PM by Başak Balıca

Living with Prader-Willi Syndrome. How to live with Prader-Willi Syndrome?

Can you be happy living with Prader-Willi Syndrome? What do you have to do to be happy with Prader-Willi Syndrome? Living with Prader-Willi Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Prader-Willi Syndrome

Living with Prader-Willi Syndrome

What is the life expectancy of someone with Prader-Willi Syndrome?

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Celebrities with Prader-Willi Syndrome

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Is Prader-Willi Syndrome hereditary?

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Is Prader-Willi Syndrome contagious?

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ICD10 code of Prader-Willi Syndrome and ICD9 code

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Is there any natural treatment for Prader-Willi Syndrome?

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Prader-Willi Syndrome diet. Is there a diet which improves the quality of l...

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What is the history of Prader-Willi Syndrome?

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Find people with Prader-Willi Syndrome through the map. Connect with them and share experiences. Join the Prader-Willi Syndrome community.

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