Which advice would you give to someone who has just been diagnosed with Progressive Supranuclear Palsy?
See some advice from people with experience in Progressive Supranuclear Palsy to people who have just been diagnosed with Progressive Supranuclear Palsy
I wish my mother had been diagnosed sooner because we would have taken more advantage of the time we had knowing things would become more difficult. My advice would be do as much as you can of the things you love to do for as long as you can. And tell those anything you want them to know while you still have that ability. Live those years on your own terms as long as you can.
Take each day ad it comes. When you can go for walks, be with family and friends. When you have a day that you don’t want to do much of anything then don’t, your brain is working overtime and you need your downtime.
That is a and illnesses complicated to keep the hope alive that it will appear soon, but a cure , but medicines to treat the disease as the augers of diseases that afflict us
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.This was my journey off PSP with my Husband it may be able to help some of you are new to this to let you know what PSP is all about..... I was my husbands carer,he was diagnosed with PSP in 2009 after 2 years of trying to find out what was wrong wi...
my dad was sadly diagnosed with psp on Jan 31st 2014, he had been having symptoms for at least 5 years.
sadly my dad passed away on 16th October this year.
Unfortunately I am on here marking 2 diseases on the map one for my mother who suffers from Corticobasal Degeneration (CBD) and another for my 12 (almost 13) year old niece who has Cystic Fibrosis. My family have been through so much we lost dad las...
My mom was diagnosed with CBD (Corticobasal Degeneration) in the summer of 2009 although some symptoms started showing as early as 2007 and finally died in August 2013. I have created a blog in Greek about the disease to try to inform other Greeks ...