Living with Progressive Supranuclear Palsy. How to live with Progressive Supranuclear Palsy?

It is one of those life each day as it comes and appreciate what one can do as long as one can do it. I think also having family and friends around is crucial. My mother would light up anytime any of her family visited. It is such a lonely, isolating disease once one is unable to communicate or show emotion.

Live one day at a time.
Appreciate your loved ones.
Get your affairs sorted, ie important documents like your Will, Power of Attorney, Advanced Health Directive

For as long as I could I would take him out, first with a walker, then with the wheelchair. Later, as the disease progressed I accepted that some things were no longer good for him and scaled back on activities.

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