Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Síndrome de Alagille?

Veja alguns conselhos de pessoas com experiência em Síndrome de Alagille para as pessoas que acabam de ser diagnosticadas com Síndrome de Alagille

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Seeking out for answers and question online in support groups the best way you can get information for just being diagnosed. When i was younger there wasnt the online support group that there is now. And im almost 18 and i still to this date seek out information because with out a doubt someone has at least experienced or is experiencing what you are going through. And the good thing is you could be helping someone else if they ask a question. I really recommend it. And you can look through all the questions asked its perfect.

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