Qual é a esperança de vida com Síndrome de Allan-Herndon?
Esperança de vida com Síndrome de Allan-Herndon: o que dizem a investigação e os doentes, avanços recentes e resumo revisto com fontes.
Original
Although several patients have survived into their 60s, overall life expectancy is compromised and quality of life is severely affected as most patients are unable to sit, stand or walk independently.