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You need to consult a Chiari specialist Neurosurgeon and it is diagnosed by symptomatology and brain MRI. Specialists who can be helpful are a caring, willing to be informed primary care doctor, a Chiari specialist Neurosurgeon, an immunologist, a gastroenterologist, an endocrinologist, a cardiologist, a geneticist, and a psychologist or therapist. You need a full spine MRI to start with. Then hopefully a tilt table test, a flexion/extension CT and MRI or the new upright craniocervical junction MRI, and an eval either done by the neurosurgeon or a geneticist or sometimes a rhematologist for Ehlers-Danlos Syndrome. You need to be checked for all common co-morbities in order to weigh your options for surgery and with what surgeon and what needs to be taken into account. Common co-morbidities include Tarlov cyst disease, tethered cord syndrome, autoimmune disease, gastroparesis, syringomyelia, craniocervical instability, cervical medullary syndrome, migraines, mast cell activation disorder, and more.