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Castleman's is so rare it can be misdiagnosed or left undiagnosed for some time. A Dr Robinson in Bristol United Kingdom diagnoses in 2 weeks.
Consultants in Swansea took 9 months to diagnose me because they firstly ignored my lump and secondly kept refusing to take core biopsy. As soon as they did I was diagnosed but they delayed treatment for 3 months and in that time I started feeling nerve damage