Original
After 4 years battling doctors, SSDI & trying endless meds I am now homebound & bedridden to the point that I have (liquid) supplies delivered, only go out for doctors visits or hearings (SSDI). Working is impossible as any exertion triggers pain, fatigue, insomnia, brain fog in a never-ending cycle. I wear a DNR bracelet as hospitals don't know what to do with ME/CFS patients either, and I do not want them to intervene with painful tube feeding or resuscitation - which would actually kill me.