2. Síndrome de Dandy-Walker
3. Interviews

Julia's interview

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How did all start?

Em 12/2018 apos uma ultrasonografia.

Do you already have a diagnosis? How long did it take you to get it?

Levou quase um ano, desde a ultra.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Pediatria, fisioterapia,genética, neurocirurgião. O neurocirurgião foi o mais conclusivo.

What has been the most useful thing for you so far?

O acompanhamento mensal da equipe do IFF.

What have been your biggest difficulties?

Ter mais informações sobre a sindrome.

How has your social and family environment reacted? Have your social or family relationships changed?

Preocupados, mas super solicitos. Em especial no trabalho, que foram muito flexíveis com minhas faltas para consultas.

What things have you stopped doing?

Nenhuma.

What do you think about the future?

Tenho esperança de meu filho ser independente.

So far, which years have been the best years in your life? What have you done during them?

Agora, vivo.

What would you like to do if you didn’t have your condition?

Não faria nada diferente.

If you had to describe your life in a sentence, what would it be?

Feliz com as vitórias diárias.

Finally, what advice would you give to a person in a similar situation?

Estude muito, não se desespere no inicio e busque ajuda.

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