É fácil encontrar um(a) parceiro(a) e/ou manter um relacionamento quando se tem Síndrome de Ehlers Danlos?

Pessoas com experiência em Síndrome de Ehlers Danlos dão suas opiniões sobre se é fácil ou não ter um(a) parceiro(a) ou manter um relacionamento quando se tem diagnóstico de Síndrome de Ehlers Danlos. Quais são as possíveis dificuldades de ter um relacionamento?

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Unless you find someone who is really willing to get through all of the pain and all of the problems that might arise, you're going to have some troubles. I am in a relationship for 4 years now. We began dating before I was diagnosed but way after I started having pain and joint problems. One of the major difficulties is getting him to understand how in some days I feel like absolute sh*t, all of my joints hurt and I cannot give another step. How I can't stand for very long or ow I need to sit every so often.

When you're looking for a partner, try to be honest. I think no one likes to be dating someone and then only discovering what their life really is.

Translated