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Find the best specialists you can. Look for people who have experience with treating EDS.
Get accommodations for school or work. Special pens and pencils, a better chair, 504 plans, etc. can all be very helpful.
Don't be afraid to use assistive devices and mobility aids that you need.
If your friends are not supportive or understanding, try explaining how EDS affects you and answer their questions. If they still aren't supportive or understanding, and they aren't trying to be, dump them. It hurts but you'll be better off. You deserve friends who are supportive and understanding and kind.