Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Síndrome de Ehlers Danlos?

Veja alguns conselhos de pessoas com experiência em Síndrome de Ehlers Danlos para as pessoas que acabam de ser diagnosticadas com Síndrome de Ehlers Danlos

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Write everything down.
If you suffer from widespread issues write down each issue. It makes it easier to deal with each problem. You can also ensure you see the right person.
At appointments take notes som you don't forget things to. You can be given a huge amount of info at adornments which can be easily forgot when you walk out the door.
Most importantly you are not alone, they're are thousands of others who were in you pave once and we're happy to listen

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