Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Síndrome de Ehlers Danlos?

Veja alguns conselhos de pessoas com experiência em Síndrome de Ehlers Danlos para as pessoas que acabam de ser diagnosticadas com Síndrome de Ehlers Danlos

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To LIVE, do the things you enjoy while you can, you may not be able to later! Don't think of EDS as a death sentence, think of it as a reason to explore the world and not procrastinate. DON"T be reckless, DO be kind, to both yourself and others. What would I have done differently?, I wouldn't have been such a perfectionist and I would have been less judgmental towards others. Also, I wouldn't have been as demanding on my body physically, wouldn't have pushed so hard and maybe could have avoided several injuries.

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