Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Síndrome MIRAGE?

Veja alguns conselhos de pessoas com experiência em Síndrome MIRAGE para as pessoas que acabam de ser diagnosticadas com Síndrome MIRAGE

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Seek answers. Do not be passive. If a doctor isn't explaining themselves sufficiently, ask for a different doctor. It is essential that all members of the care team communicate effectively, and never forget that you are a vital member of the team. Trust your instincts. Be prepared to repeat yourself again and again, if necessary. Keep detailed records of hospitalizations, diagnoses, medications, doctor names and contact information, everything.

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