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I was told 2 months to 2 years, tops. Butkus! Its been 13 years. I'm still alive, and I'm recovering. I know of many sufferers that survived 30 years or more.
Western Medicine can't help you. They don't treat illnesses. They prescribe toxic chemicals to mask the Symptoms. This condition needs to be treated by removing the toxins from your overloaded immune system, not masking the symptoms with more toxins. If you focus on detox and strengthening your immune system, while avoiding all toxins, you can have as much expectation to live a "regular" lifespan as a "normal" person.