Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Disostose Acro-Facial Tipo Nager?

Veja alguns conselhos de pessoas com experiência em Disostose Acro-Facial Tipo Nager para as pessoas que acabam de ser diagnosticadas com Disostose Acro-Facial Tipo Nager

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I would say Welcome to the Family! This can be a wonderful thing to become familiar with your doctors and top nurses, and the surgeries are just another thing you have to go through, not a lot of options. I would have grown up more proud of myself if I wasn't so darn quiet shy kid thing.

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