Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Osteopetrose?

Veja alguns conselhos de pessoas com experiência em Osteopetrose para as pessoas que acabam de ser diagnosticadas com Osteopetrose

Original


I was born with it so it was natural for me to accept i have this disease. Over time I knew I had to limit myself. I would tell people that it is not the end of the world. Your mind is still sharp so use it. The body doesn't control my mind, but otherwise my mind controls my body.

Translated