A Porfiria interview .

Gláucia Marques's interview


How did all start?

I born with the desease.

Do you already have a diagnosis? How long did it take you to get it?

Yes. i had the diagnosis with 3 years old.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Sunscreen.

What have been your biggest difficulties?

I have a job that requires me to leave the house.

How has your social and family environment reacted? Have your social or family relationships changed?

My family and my husband help me a lot.

What things have you stopped doing?

I stopped drinking alcohol.

What do you think about the future?

I believe they lived for many years.

So far, which years have been the best years in your life? What have you done during them?

my childhood because i didn't have many problems other than studying.

What would you like to do if you didn’t have your condition?

I would like to go swimming in the sea every Sunday.


11 de out. de 2023

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