Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Policondrite Recidivante?

Veja alguns conselhos de pessoas com experiência em Policondrite Recidivante para as pessoas que acabam de ser diagnosticadas com Policondrite Recidivante

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Finding the right Rheumatologist is been most important to me. The first one I had agreed I had RP, but he didn't take much interest in it. So after a year, I let him go. I found another one who said it was a privilege for him to take care of me. He prays for me in his office. We are in one accord. I can write to him in my Patient Portal and tell him what is going on between visits. I did that yesterday and he is having me come in this afternoon. I feel like I am special to him because I am the only patient he has with RP at this time. That's the way it should be!

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