Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Retinite pigmentosa?

Veja alguns conselhos de pessoas com experiência em Retinite pigmentosa para as pessoas que acabam de ser diagnosticadas com Retinite pigmentosa

Original


Well when I was diagnosed it was interesting, I was treated like an experiment, then told I was a child lying for attention, in those days it was a diagnosis for unknown answers. However, today there are so many tests they can do, genetic testing, eye testing, nuerogical testing and so on, it is now a know diagnostic rather than unknown diagnostic.

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