Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Síndrome de Rubinstein-Taybi?

Veja alguns conselhos de pessoas com experiência em Síndrome de Rubinstein-Taybi para as pessoas que acabam de ser diagnosticadas com Síndrome de Rubinstein-Taybi

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Every person with rts is different the syndrome can range from mild to severe. Treat accordingly and take things one at a time. Those with RTS are usually very happy and easy to get along with. They are very sensitive and caring. Speech delay or being nonverbal can lead to frustration for the child or adult and sign language will be very helpful in the long run. Some with RTS have a very weak immune system and there bones are easily broken (Just bumping into a doorway had my son in a cast with 4 broken toes). Having a weak gait makes it a bit harder to walk ,my son has a side to side waddle but can walk fine on his own but with close supervision

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