Quais são os melhores tratamentos para Síndrome de Saethre-Chotzen?

Tratamentos para Síndrome de Saethre-Chotzen: o que funciona segundo os doentes, com um resumo clínico revisto e com fontes.

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Surgery to prevent an increase of inner cranial pressure by separating the craniofacial sutures.
Surgery may be needed to correct ptosis, the drooping of eyelids.
surgery may be necessary to correct deformities in the face, jaw, ears, find gers and toes.
Often there are dental and orthodontic issues that need correction.
May or may not be present with a cleft palete.

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