Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Síndrome de Sturge Weber?

Veja alguns conselhos de pessoas com experiência em Síndrome de Sturge Weber para as pessoas que acabam de ser diagnosticadas com Síndrome de Sturge Weber

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Sturge-Weber Syndrome is never the parents fault. They did not do anything to cause this to happen to their child. Take your child to a neurologist, dermtologist, and opthomologist. Watch them closely. Although your child will exhibit the symptoms of sturge-weber the severities. do not be overprotective. Let them flourish like a normal child. Teasing will occour, but instead of getting mad, teach others about your child's condition. Awareness goes a long way. Make sure they get the appropriate help so they may succeed in school. Every Sturge-Weber child is different and will have differing life challenges.

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