Que conselhos você daria a uma pessoa que acaba de ser dignosticada com Síndrome de Usher?

Veja alguns conselhos de pessoas com experiência em Síndrome de Usher para as pessoas que acabam de ser diagnosticadas com Síndrome de Usher

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I know it is very hard to be diagnosed with this awful disease and that it will have a great impact on your future life. But Usher Syndrome isn't the end of the road. I think one lesson would be the most important lesson you could ever get, focus on your ability - the awesome things you can be, or can do. Think big, not small. Other people have problems to. You are special and you have a great life ahead of you.

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