Оригинал
I have lived with sma syndrome for 28 years now and was only formally diagnosed in 2015. Malnutrition and wasting away ( weight loss) will affect you the most and pain. You have uncontrollable weight loss. This unfortunately will affect your entire body , organs etc. Technology has improved and more and more drs are getting to know about sma syndrome. People are getting diagnosed faster and drs have a better understanding about the syndrome