Оригинал
There are two type of people: those with the compassion gene and those without. You will find out who they are when you have to cancel or change plans the first time because of your disease. Don't fret over the non-compassion folks, and you'll be surprised at who they are. They could even be family members. Some of mine are. On the flip side, you will find the BEST friends come out of the woodwork to support you. Cherish them and ditch the others and DON'T LOOK BACK.
Joining the Vasculitis Foundation has also been one of the best decisions I made. Many long distance friendships online have formed and solidified at the meetings and symposiums. Join and be vocal about what you learn. Join the Facebook groups too. Lots of things shared become knowledge to take to doctors who may not know some new method or workaround.