What signs or symptoms may make you suspect you may have Rubinstein-Taybi Syndrome. People who have experience in Rubinstein-Taybi Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

▷ How do I know if I have Rubinstein-Taybi Syndrome?

Stories of Rubinstein-Taybi Syndrome

RUBINSTEIN-TAYBI SYNDROME STORIES

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My name is Raelyn Hollins. I am 2 years old. When I was born the doctors thought that I had a seizure, so I was sent to a bigger hospital to be monitored in the NICU. Many tests were performed on me. A geneticist came up with the diagnosis of Rubinst...

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12/26/15, 7:38 PM by Raelyn Hope Hollins

RARE

I gave birth to a baby boy 14 years ago. A few hours after birth I was informed that something was severely wrong with his heart( DORV, VSD, Bicuspid aortic valve, 80% blockage of the Aorta)- Complex Congenital Heart Defect.. Rare... 20% success rate...

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3/30/17, 2:07 PM by Magan

MY SON

I found out September of 2015 that my son has Rubenstein Taybi syndrome. He's 4 now, & I hope to connect with others. I love to know how families can help their kids with this condition. He's up to 3 words & 3 syllables. We haven't been able to be su...

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5/21/16, 9:34 PM by Luz

MY DAUGHTERS STORY

Savannah was born in 2003 our only daughter had finally arrived. We already had two very happy and healthy boys 9 and 3 years older than our daughter. Savannah developped slowly was never a huge eater and was a few montlhs behind in her goals to wh...

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3/31/17, 12:23 AM by Rachelle

RTS

Was adopted with RTS. Lots of surgeries.lots of doctors. Lots of love.

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3/30/17, 7:33 PM by Tabitha

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Rubinstein-Taybi Syndrome forum

RUBINSTEIN-TAYBI SYNDROME FORUM

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TAKAYASU

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by Wanda

TAKAYASU ARTERITIS

Where are the areas in the world where Takayasu is located?

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by Wanda

How do I know if I have Rubinstein-Taybi Syndrome?