Sandhoff Disease diet. Is there a diet which improves the quality of life of people with Sandhoff Disease?

Are you aware of a diet that can improve the quality of life of people with Sandhoff Disease? Is there a diet that is suggested to avoid when having Sandhoff Disease? See if there is a diet that can improve the quality of life of people with Sandhoff Disease, recommended and to avoid food when having Sandhoff Disease

1 answer

I know that most people affected by Sandhoff Disease have seizure activities. My son is on a Ketogenic diet. That's to help maintain his seizures and to coincide with one of his medication side effects.

Posted Feb 24, 2017 by Levi Christopher Lucero, Jr. 2185

Sandhoff Disease diet

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Stories of Sandhoff Disease

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HULTÉN'S STORY

Hi! My name is Ludwig and I´m 8 year and I'm from Sweden. I was diagnosed summer 2015. I have bad balance, I fall much, I use to walk but now I use a wheelchair.

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1/5/16, 10:20 AM by Hultén

GENEVIEVE ELISE

My Daughter Gen is 17 months old. She was born 7/2014 and was diagnosed at 8 months old. She showed delayed milestones and poor muscle tone. What we initially got her checked out for was nystagmus, an eye condition. But they wanted to do further ...

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1/5/16, 1:54 PM by Denise

MY DAUGHTER REBECCA

My daughter Rebecca was diagnosed with Sandhoff disease in 2005 when she was 10 months old. Sadly she lost her fight in August 2008, 8 weeks after her baby brother came into the world.

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1/5/16, 10:33 AM by Rebecca

LITTLE ZOE

My daughter Zoe was diagnosed Sandhoff at 12 months and now She is 16 months Old. She is beautiful and We love her so much... Next week We will do g tube to feed her and give meds..I hate this thing, but it is necessary. I hope researchers will find...

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1/5/16, 5:21 PM by Francesca Ambruoso

BECCA'S STORY

My daughter was diagnosed with Sandhoff Disease in April 2013 at 12 months old. She passed away in October 2015 at 3 1/2. Feel free to contact me with any questions in managing this disorder.

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1/11/16, 8:06 PM by Becca

Sandhoff Disease diet. Is there a diet which improves the quality of life of people with Sandhoff Disease?

Sandhoff Disease diet

What is the life expectancy of someone with Sandhoff Disease?

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Celebrities with Sandhoff Disease

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Is Sandhoff Disease hereditary?

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Is Sandhoff Disease contagious?

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ICD10 code of Sandhoff Disease and ICD9 code

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Is there any natural treatment for Sandhoff Disease?

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Living with Sandhoff Disease. How to live with Sandhoff Disease?

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What is the history of Sandhoff Disease?

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