Here you can see if Sandhoff Disease can be hereditary. Do you have any genetic components? Does any member of your family have Sandhoff Disease or may be more predisposed to developing the condition?

▷ Is Sandhoff Disease hereditary?

Stories of Sandhoff Disease

SANDHOFF DISEASE STORIES

VIEWS

BY

Hi! My name is Ludwig and I´m 8 year and I'm from Sweden. I was diagnosed summer 2015. I have bad balance, I fall much, I use to walk but now I use a wheelchair.

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1/5/16, 10:20 AM by Hultén

GENEVIEVE ELISE

My Daughter Gen is 17 months old. She was born 7/2014 and was diagnosed at 8 months old. She showed delayed milestones and poor muscle tone. What we initially got her checked out for was nystagmus, an eye condition. But they wanted to do further ...

703

1/5/16, 1:54 PM by Denise

MY DAUGHTER REBECCA

My daughter Rebecca was diagnosed with Sandhoff disease in 2005 when she was 10 months old. Sadly she lost her fight in August 2008, 8 weeks after her baby brother came into the world.

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1/5/16, 10:33 AM by Rebecca

LITTLE ZOE

My daughter Zoe was diagnosed Sandhoff at 12 months and now She is 16 months Old. She is beautiful and We love her so much... Next week We will do g tube to feed her and give meds..I hate this thing, but it is necessary. I hope researchers will find...

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1/5/16, 5:21 PM by Francesca Ambruoso

BECCA'S STORY

My daughter was diagnosed with Sandhoff Disease in April 2013 at 12 months old. She passed away in October 2015 at 3 1/2. Feel free to contact me with any questions in managing this disorder.

Is Sandhoff Disease hereditary?