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Is it advisable to do exercise when affected by Sanfilippo Syndrome? Which activities would you suggest and how intense should they be?
See if it is advisable for people with Sanfilippo Syndrome to practice sports and which ones are the most recommended if you have Sanfilippo Syndrome
People with Sanfilippo Syndrome should always be encouraged to move their bodies to keep the joints fluid and to keep the skills for as long as possible. Any type of activity they enjoy and can tolerate are recommended.
Posted Nov 6, 2019 by TSF Inc Team Sanfilippo Foundation
Children with Sanfilippo Syndrome can do anything that their bodies will physically allow them to do. The only advice is to keep a close eye as they do not understand the concept of danger.
Posted Jan 1, 2018 by Danielle 3160
Yes, walking playing ball, trampoline , bike riding , as much as the body is physically is safely able to do. With Sanfilippo if you don’t use it , you lose it !
Posted Feb 25, 2019 by Patty Jesse 3000
Sadly there is no active treatments.
Posted Nov 3, 2019 by Anne-marie 2500
