Story about Sarcoidosis .

Life Changing

Jun 23, 2026

By: Kay Tomes


My life suddenly changed one day while I was kickboxing I couldn't breathe while I was training and thought it's ok just got a cold. Two weeks later still now better so I thought ok perhaps a chest infection and went to the doctor who then admitted me to hospital thinking I had a blood clot in my lung. CT scan later shws three large lymph nodes and lots of little granolaes. I have now been confirmed with skin and lung sarcoidosis and following a seizure in August I am having an MRI on the 10th November to see if I have it on my brain ( neuro-sarcoidosis) which I believe is rear so now my life has change massively I can not drive! For someone who is active it is difficult and not used to all these meds?

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