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Living with Smith-Lemli-Opitz Syndrome. How to live with Smith-Lemli-Opitz Syndrome?

Can you be happy living with Smith-Lemli-Opitz Syndrome? What do you have to do to be happy with Smith-Lemli-Opitz Syndrome? Living with Smith-Lemli-Opitz Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Smith-Lemli-Opitz Syndrome

Living with Smith-Lemli-Opitz Syndrome
1 answer
Translated from spanish Improve translation
You should normalize the situation as much as possible, always within the possibilities of each case and the degree of their involvement and/or severity in the symptomatology and associated processes. Meet a diet high in cholesterol is key to achieving a stability at the level of behavior and progress of the improvements in conditions associated to the disease (improvements in the growth, improvement of the emotional stability of the affected, appetite, social development, sleep, also improvements in the photosensitivity, etc.).
You can be happy with syndrome, Smith Lemli Opitz if you have the right support and the environment to further the understanding of the disease and enable a proper treatment of the symptomatology associated, to facilitate the development and be a "hand" that will help and guide you is very important for people affected by ONLY be as happy as possible.
To be happy with the syndrome just be a happy person, the happiness does not depend on the diseases they have or don't have, but of our own interior, of our education, and respect.

Posted Nov 23, 2017 by Ruth 750

Living with Smith-Lemli-Opitz Syndrome

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History of Smith-Lemli-Opitz Syndrome

What is the history of Smith-Lemli-Opitz Syndrome?

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World map of Smith-Lemli-Opitz Syndrome

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Stories of Smith-Lemli-Opitz Syndrome

SMITH-LEMLI-OPITZ SYNDROME STORIES
Smith-Lemli-Opitz Syndrome stories
I added my daughter Robyn she was born on the 07/10/13 and lived for 26 hours. I have just found out 2 years on that she had smith-lemli-opitz syndrome and that i'm a carrier. I found out at my 20 week scan that my baby was very ill and had a major h...

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