Leaves patient with horrible posture. Makes patient feel rigid and stiff especially in the trunk area. I personally don't like the sensitivity in my feet, legs nor do I enjoy the sensitivity to noise, environment. My case resulted in a particular episode. This also impacts physiological areas for each person.
There are 171 people in the Stiff Person Syndrome map
I am a 68 year old male, born in Scotland but live in Sydney Australia who has lived with back problems since 1973, mid 1986 while holidaying in Oregon I went white water rafting on the Rogue River on an inner tube, unfortunately I was thrown off and...
I was misdiagnosed with Lupus in 2009 and finally got the correct diagnosis through GAD testing in Oct 2015. My neurologist, who specializes in SPS, Dr. Machado in Conn is the reason I am alive today along with my children and my husband and family. ...
Symptoms started very gradually during/after first and only pregnancy in 2004. Full blown symptoms, including stiffness, drooping eyelids and soft palette, vertigo, dizziness, and altered gait by 2008. Diagnosed first with Myasthenia Gravis, and then...
My name is Stacy Mayle and I'm 47 years old. I was diagnosed with Stiff Person Syndrome (SPS) 4 years ago, after developing symptoms at age 37. It took 10 years to diagnose since it is such a rare disorder. Causing the muscles in my body to become st...
19 people with Stiff Person Syndrome have taken the SF36 survey. Mean of Stiff Person Syndrome is 1189 points (33 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey