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What is the prevalence of Stiff Person Syndrome?

How many people does Stiff Person Syndrome affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Stiff Person Syndrome
2 answers
Officially 1 in a million, however, I would bet that there are more cases that go undiagnosed.

Posted Dec 25, 2021 by Pathdoc 2500
Translated from spanish Improve translation
Environment 2 inhabitants per million diagnosed. But it may be that some who are not ever diagnosed.

Posted Sep 18, 2017 by Fernando Vela Vallejo 3250

Prevalence of Stiff Person Syndrome

Stiff Person Syndrome life expectancy

What is the life expectancy of someone with Stiff Person Syndrome?

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Celebrities with Stiff Person Syndrome

Celebrities with Stiff Person Syndrome

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Is Stiff Person Syndrome hereditary?

Is Stiff Person Syndrome hereditary?

4 answers
Is Stiff Person Syndrome contagious?

Is Stiff Person Syndrome contagious?

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ICD9 and ICD10 codes of Stiff Person Syndrome

ICD10 code of Stiff Person Syndrome and ICD9 code

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Natural treatment of Stiff Person Syndrome

Is there any natural treatment for Stiff Person Syndrome?

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Living with Stiff Person Syndrome. How to live with Stiff Person Syndrome?

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World map of Stiff Person Syndrome

Find people with Stiff Person Syndrome through the map. Connect with them and share experiences. Join the Stiff Person Syndrome community.

Stories of Stiff Person Syndrome

STIFF PERSON SYNDROME STORIES
Stiff Person Syndrome stories
I am a 68 year old male, born in Scotland but live in Sydney Australia who has lived with back problems since 1973, mid 1986 while holidaying in Oregon I went white water rafting on the Rogue River on an inner tube, unfortunately I was thrown off and...
Stiff Person Syndrome stories
I was misdiagnosed with Lupus in 2009 and finally got the correct diagnosis through GAD testing in Oct 2015. My neurologist, who specializes in SPS, Dr. Machado in Conn is the reason I am alive today along with my children and my husband and family. ...
Stiff Person Syndrome stories
Symptoms started very gradually during/after first and only pregnancy in 2004. Full blown symptoms, including stiffness, drooping eyelids and soft palette, vertigo, dizziness, and altered gait by 2008. Diagnosed first with Myasthenia Gravis, and then...
Stiff Person Syndrome stories
2009- infectious mononucleosis 2010 - diffuse toxic goiter 2011- endocrine ophthalmopathy 2013 - diabetes type 1 2013 - thyroidectomy 2014 - c-section 2015 - SPS
Stiff Person Syndrome stories
> My name is Stacy Mayle and I'm 47 years old. I was diagnosed with Stiff Person Syndrome (SPS) 4 years ago, after developing symptoms at age 37. It took 10 years to diagnose since it is such a rare disorder. ...

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