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Can people with Stiff Person Syndrome work? What kind of work can they perform?

See how people with experience in Stiff Person Syndrome give their opinion about whether people with Stiff Person Syndrome can work and what kind of jobs are more appropriated for people with Stiff Person Syndrome

Stiff Person Syndrome jobs
8 answers
Computer at home work.
Work as long and for as many others as possible.

Posted Feb 28, 2017 by Loretta 1000
Some people with Stiff Person Syndrome can carry on with normal lives; working full time, exercise and enjoy full mobility with out aid.
Others are able to work part time. The biggest obstacle for those that are able to work is the time they have to take off for infusions and appointments.
Most eventually reach a point that they will become unable to work.
People with Stiff Person Syndrome would probably find a flexible administrative position easiest as working jobs requiring the use of heavy equipment or a lot of driving probably would not be available to someone taking a lot of sedating medication.

Posted Mar 1, 2017 by Michelle 1500
Very dependent on the variant the sufferer has, and their attitude to the diagnosis.
A number of people do work for a while, but then find it becomes too difficult.

Posted Mar 1, 2017 by Liz 1000
This depends on the severity of the syndrome and what stage it is at. Some people can and do work while others cannot work full time or even part time.

Posted Mar 4, 2017 by Jasmine Nardone-Franco 1430
Whether or not you can work depends on how progressed the disease is, how soon after symptoms started that you received a diagnosis with treatment commencing, how well you're responding to treatment (including side effects from the medications) and what kind of work you're in.

Forget high stress jobs, those where there's a lot of noise, motion, emotional distress, places you might receive even a light touch, open areas. These are all things that are triggers that can set off an episode of spasms, stiff or rigid muscles, falls, difficulty breathing and a number of problems associated with the disease.

Consider whether or not you can drive or have transportation to go to and from work. If your disease is advanced, how many days in a month would you miss work because of the disease. This can make a difference in whether or not you'd be considered by anyone for hire or if you should consult an attorney for the purposes of filing for disability. These are just some of the things I've gone through over time.

Though I don't know the percentage of people with SPS that may work, I know there are few people known to have the disease and few doctors that know what to look for or understand how to cope with it so it takes roughly seven years to diagnose if you have the GAD65 antibodies (though mine took 15-16 years). Not everyone has the antibodies. That said, I imagine even the undiagnosed keep working until they miss too much work or can't stand the pain and other symptoms.

Posted Sep 18, 2021 by hope7dre 300
I am a physician and had to retire due to fatigue, falls and fear of misdiagnosing patients.

Posted Dec 24, 2021 by Pathdoc 2500
I was just diagnosed a little over a week ago. I consider myself lucky. Not only was I quickly diagnosed, my team of doctors started me on diazapam and IVIG treatment. The spasms are shorter in nature, and the pain (my God the pain) is nothing to what it was before.

I'm in my early 40's. Life just started to make sense. But even with the great care I received the the Minneapolis VA medical center. I suffer from exhaustion, muscle fatigue, dizziness, and double vision. Working for me, may not be in my future.

Posted Apr 27, 2022 by Yoland 100
Translated from spanish Improve translation
The principle can work in positions that do not requeran physical exertion, or exposure to heights. With the evolution, if needed treatment with high doses of psychotropic, the patients suffer from an utter inability to prmanente.

Posted Sep 18, 2017 by Fernando Vela Vallejo 3250

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