Att leva med Evans syndrom. Hur livet är med Evans syndrom.

Läs om vad människor med Evans syndrom säger om livet med denna diagnos. Kan man leva ett lyckligt liv med Evans syndrom? Läs om saker andra gjort för att få ett lyckligare liv med Evans syndrom.

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Get support to work through the impact of Evans. Be aware that if you become very unwell that it can be terrifying to friends and family.
I think it's important to take each day as it comes and not focus too much on the constant possibility of relapse or the 7% mortality rate.
One can live very well with Evans. Don't let it take over your life.
I use a lot of mindfulness and acceptance and commitment therapy approaches on myself. It's been gratifying to know that the strategies I use with clients have also helped me!

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