Vilka råd skulle du ge till någon som just fått diagnosen Glykogenos?

Läs om vilka råd de som levt ett tag med med Glykogenos ger till den som just fått sin Glykogenos diagnos

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With type 3 don't be overwhelmed and don't believe everything you hear. Most doctors have never heard of it or if they have, they have never treated anyone with it. Do your research and talk to many people who deal with it. Then formulate your own plan and go with it. You are your best advocate and will know your situation better than anyone!

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