Jouberts syndrom diet. Finns det någon diet som förbättrar livskvaliten för den med Jouberts syndrom?

There is no general diet for Joubert syndrome, however some conditional dietary needs may arise, for example some children are tube fed or require a puréed diet due to oral motor, and aspiration issues. High calorie diets early on can help make up for feeding defecits and maintain healthy weights. Those with Kidney disease may require closely monitored fluid intake and output and a kidney healthy diet... etc